Navigating bladder failure can feel overwhelming, particularly in the early stages. Below you will find a curated list of organisations, NHS resources, and practical guides that we believe are genuinely useful. This list is regularly reviewed and updated.
If you know of a resource that should be included here, please do get in touch.
NHS: Urinary RetentionThe NHS provides clear information on the causes, symptoms, and treatment of urinary retention — one of the most common presentations of bladder failure. [Visit NHS.uk →] (https://www.nhs.uk/conditions/urinary-retention/)
NHS: Urinary IncontinenceFor those whose bladder failure involves leakage or incontinence symptoms. [Visit NHS.uk →] (https://www.nhs.uk/conditions/urinary-incontinence/)
NHS Continence ServicesMost NHS trusts offer specialist continence services. Ask your GP for a referral, or contact your local NHS trust directly.
Bladder & Bowel UKA leading UK charity providing information, support, and resources for people with bladder and bowel conditions. Their helpline and online resources are widely respected. Website: www.bladderandbowel.orgHelpline: 0161 214 4591
Continence Foundation of Australia (for international readers)Though based in Australia, their resources are widely used and offer clear patient-facing guidance on bladder conditions.
ERIC — The Children's Bowel & Bladder CharityFor families and children affected by bladder dysfunction. Website: www.eric.org.uk
For people managing bladder failure through CISC, the following resources offer guidance on technique, supplies, and support:
Bladder & Bowel UK — Catheterisation ResourcesPractical guides on catheterisation for men, women, and children. [Visit resource →] (https://www.bladderandbowel.org/bladder/urinary-catheters/)
NHS: Urinary CathetersOverview of catheter types, management, and when to seek help. [Visit NHS.uk →] (https://www.nhs.uk/conditions/urinary-catheters/)
Your catheter suppliesIf you are eligible for NHS prescription catheter supplies, these are typically available through your GP, continence nurse, or specialist. Home delivery services are also available through approved NHS suppliers.
Living with a long-term condition affects more than the body. If you are struggling emotionally, the following may help:
Bladder Failure UK is also working towards developing peer support opportunities. If you would like to be involved, please [get in touch].
Access to suitable toilet facilities is a significant concern for people managing bladder failure in public spaces. The following resources may help:
Changing Places UKProvides a map of Changing Places toilet facilities across the UK — larger, more accessible facilities for people with complex needs. Website: www.changing-places.org
Radar Key / National Key SchemeThe National Key Scheme (NKS) provides access to over 10,000 locked accessible toilets across the UK. Available from: Disability Rights UK (www.disabilityrightsuk.org)